|I think it was a different Mom who|
managed to put these things together!
I think that I would like her, someday
I will be her again!
Yikes! For many years I have had some sort of family plan for the summer - we set goals, fill out charts, earn prizes, etc... This year my mind is blank. Summer vacation began this week, so I pulled out our "school year plan" book that I made last fall. We didn't do very well, so I was hoping that we could just change dates and use it for summer instead - the book I pulled out was Mark's. His final "journal entry" said, "We got our results from Huntsman [Cancer Institute] today."
|Wow - this looks great, |
I had better get to work!!
We simply cannot function well when our load gets heavy. I am very aware that my load is nowhere near as heavy as others. Within the last few weeks I have heard of two other young men who have had bone tumors similar to Greg's. One lost his leg and the other lost his life. I have heard of a friend's brother who had a chordoma like Jackie, and he passed away within the year. My friend's daughter had a brain tumor a few months ago that will affect her for the rest of her life - and as I was preparing to leave the hospital I overheard a distraught mother on the phone saying, "I don't know what will happen... they say that it is a quarter the size of her brain."
|I was intrigued to see that the|
back of last summer's book
matches my blog background.
Life is a Journey!
I write that I am feeling weak, and I write that I have strength - sometimes I feel that it is this strength (which is not my own) that gives me the ability to allow myself times of weakness.
Why have we been so blessed to have such positive outcomes so far? I have believed it is to give my children experience to be strong and help others in their future. I see that it also gives me empathy that I cannot gain any other way - I can be a more effective friend because of the things that I am learning now.
One of life's best lessons - things can really seem bad - but we choose our response. There is so much to be happy about, so much to be grateful for - and the sun will always rise. Despite knowing that we can be happy - there are times of sorrow and discouragement - I figure these times are a blessing so that we recognize the difference when peace does come - and it takes time.
|Sunday - Natalie wanted to go|
to church - and we found out
her hair would cover her scar.
I find myself writing the same things over and again - this is what is on my mind and they are important lessons... I will write it again, I am sure.
|Public invited - Free!|
We saw our neurosurgeon yesterday. He was pleased with her wound care. One more week until she can fully immerse her head in water - then six weeks of careful activity. She can walk and hike now (non-strenuous) and then proceed to light jogging, etc. No contact sports for three months which is when we will do our follow-up MRI. Her tumor is called a DNET (Dysembryoplastic neuroepithelial tumor)
It is benign - but it is usually associated with epilepsy/seizures. Natalie has never had a seizure, so we are grateful to have it out before symptoms began. Following her first surgery, the surgeon had told me that the "unusual" tissue he had removed appeared to resemble tissue associated with seizures - during her second surgery, when they removed the tumor, they also removed more of these unusual areas. I am glad that they are out - perhaps this is why she needed to go twice? It seems that after the tumor was removed that the pathologist said something about those areas being messed up due to the presence of the tumor (like scar tissue maybe).
I just remembered another "chordoma" story that I learned this spring. Our neighbors said that their nephew had a chordoma just a few years ago - it had wrapped around his brainstem and was inoperable. I think that he was 17. Then... it was gone, completely. They attribute it to a miracle and so do I. There is no other explanation. We go to different churches, but can we say that we are of different faiths? I don't really believe so. We pray to the same God and we are all his children. My sweet niece, Camille, is in Mexico preparing to serve as a missionary in Houston, TX. Her most recent letter included this quote from Richard G. Scott regarding prayer, "You are His child! You can trustingly approach Him! He doesn´t care if your feelings are clumsily expressed, you´re His child! He wants to hear from you!¨